We finally have a diagnosis for HRH. This is preliminary, but will be confirmed next week with further tests. Everything grinds to a halt in Ireland for the 4 day Easter weekend you see. Anyway he has Langerhans Cell Histiocytosis, a very very rare disease. Our Dr. said there are 50 cases in the UK but my husband has done some research and says there are 73 cases between Ireland and the UK. Regardless, this still fits with the statistics of 1 case per million people. Seriously..........it had to be my child! HRH already has it in his skin and his bones so will have chemotherapy and steroids. I assume he will be having further tests to see if it has travelled to any of his internal organs *sticks fingers in ears and sings lalalalalalalala* After I have flattened the Drs with every question I can think of, on Tuesday morning, I will know more, until then I am just guessing. The long Easter weekend is veeeery loooooong this year.
Meantime, in an effort not to get too carried away with stress, Firstborn and I had a lovely day out yesterday. It got a write up on Nintendo Scene and he got mentioned quite a bit, mostly because of his villianous 9 year old tendencies and Pokemon obsession! It was a great day out though and a lovely break from the madness.