The Rheumatologist never came on Friday but should do so on Monday. It looks like he has a bigger problem than was initially thought (really??!! should have listened to his mother) and Arthritis has been bandied about a bit. I have to say, I resent that he could have something like this, I think autism is enough for him to deal with.
But, really, I think my problem here is that I miss my happy little boy sooooo much. He is in a lot of pain, all the time. He is unable to sit for more than a few mins, and even then he can't do that until about 40 mins after he gets his pain meds. His social interaction with his siblings is non-existent, he rarely speaks anymore, or laughs for that matter. He has several big sores on his face where he keeps digging his nails into himself and cutting himself and keeps going back to dig out more skin. He ate two biscuits and a packet of chocolate buttons yesterday, about average for him now. Some days he won't eat at all, nothing! He has lost a lot of weight.
I am stunned at the effect this issue is having on his quality of life. I expect we will be in hospital for most of next week while they do more tests. Poor fella is distraught being back there. He screams when I put him on the bed because bad things happen on the bed, examinations, blood being drawn, that kind of thing.
It is two months since he started limping, 6 weeks since he last walked. I am going to camp out at the hospital and refuse to leave until we have answers. They will have to arrest me to get me to leave! This has gone too far and it shouldn't have taken this long for them to listen to me and recognize his pain.