Meantime HRH is now in serious pain. He had a Cardiac Echo done on Tuesday and the technician pulled him down the bed by his legs. His mouth opened to scream in pain, but no sound came out. Yep, the silent screams are the worst! His blood pressure is now very high without pain medication and the poor little fella can't move his legs at all now.
On the plus side, he had a feeding tube inserted (on my request as he has lost so much weight) and in just two days it has done him the world of good. Look:
(warning, proud Mommy moment follows, but do look, it is lovely)
Blog Gems is being hosted by Blue Sky and will go live tomorrow, Sunday. Go over and join in!!
Posts
44 comments:
I had a blog post this past week titled Conundrum. Mine is so insignificant.
I really hope they find what's happening with HRH and help him. This has been going on for a ridiculously long time now.
The video was really cute! I'm glad he's feeling happy!
Ah Jen no wonder you are a proud mammy, he is a little dote and such a brave boy, I hate to hear he is in so much pain now, as for that technician that pulled his legs down give me the nod and I will go and see how they like it!! I really really hope that they hurry up and find out what this is and get to finally treat it. xxx
Oh Jen, so very gorgeous!
I had a week of an ill boy baffling the doctors, and I was terrified. I don't know how you cope with this ongoing fear.
I think of you a lot. And pray you get some answers soon.
Happy Mother's Day to one of the most incredible mums I know.
Oh darling, you can see how much weight he's lost in this. Really hope they figure it all out soon. *hugs* xxx
Sending you all love & best wishes, xxx
How terrible to read of your little one's pain -- and how brave you are to endure watching all of this, helpless. You are a strong and wonderful mother. I do hope that you get answers soon and that there is some kind of treatment, too. The video was precious -- what a bright and happy little boy!
What a dotey guy! Sorry for all the heartache and hardship that you are all going through. Hope it is resolved well and soon too.
Snowdrops is Susan Green!
My heart goes out to you. There is nothing worse than seeing your child in pain and not being able to do anything about it. And through all of that you get such a great moment like that video. I really hope you find a real "House" out there.
xxooxx
Ah Jen...this is lovely to watch... to see him smiling and looking happy :-) Lifts my heart.
Poor HRH... he really is a conundrum isn't he?!! I do wish these guys would come see him pronto...don't they know how many people are on tenderhooks...worldwide??!! And I could gleefully KILL that stupid technician!
Fingers crossed they get to the bottom of it this week. Insist that they do!
xx Jazzy
He is so brave and cheerful, and I'm glad he's getting more nutrition, now you just need a diagnosis and treatment, so hoping it happens soon xx
oh my goodness! my prayers and love and thoughts are with you all, i so hope you get some answers and ways out of this soon xxx
He's a stunning kid that he has so much sparkle when the rest of us would be grumbling under the duvet. Fab little man XXX
What a gorgeous smile there, he is so very cute. I really hope that they find out what is going on it has been going on far too long now xxx
(())) He's a gorgeous boy! I'm so sorry he's in such pain and that they still don't have answers for y'all.
Oh that's such a gorgeous video, totally melted my heart.
More {{{Jen & HRH}}} of those and more wishes for a speedy diagnosis.
Tons of love xxxx
Proud mommy moments are the best. What a sweet boy. Sending you my love and good wishes.
Ah Jen I'm so sorry to hear your little boy & you have to go through this ! I hope you get answers & a cure soon! B
Thinking of you both. Rory is a dote, so cute, i hope you get answers soon.
Mossy Mu
Oh, he has lost weight, huh...poor baby!!! I am glad he is getting something with the tube and it is helping. I so hope they find an answer ASAP. Big hugs to you all!!!!
Brave little man. I've been so self absorbed with my own health issues, I've not taken the time to sit and really read what's going on over here. I'm deeply sorry, and humbled. You're going through so much.
I pray that there is relief, and answers soon for you and for HRH. Noone could deserve it more than that gorgeous, brave little man in that (adorable) video.
My love to you.
Jen, I'm so glad the feeding tube is helping him and I love how happy he looks in the video. I'm still thinking of you all and praying for you! Update when you can!!HUGS!
Thanks so much for posting the video...so great to see him smiling! It breaks my heart to think of him in that much pain. It's Mother's Day here tomorrow...I think you've had yours already, but you definitely deserve another. I'm thinking of you guys every day. XOXOXO Lynn
What a cute boy...and a plucky one, too. I pray that they will find out soon what is wrong so they can give him some relief.
Jen, it is so good to see his smile. I am hoping you will get the cause soon, you have been through so much.
So sorry to hear about your situation but glad that the feeding tube is working. Really hoping that you get answers very soon and some effective treatment for your little boy. xx
Hi Jen, what a great video, he's such a sweetie! My heart goes out to you xxxxxxxx
It's like watching an episdoe of House reading your blog! Can't believe still no answers - fingers crossed that's a good sign and cancer is eliminated from the investigations.
Thinking of you all as always.
So sad for you and HRH. Still praying for you all.
I just want to whisk you all away to a place where you can rest and HRH can get better. Thinking of you everyday and hoping you get answers. Stat.
Thank you so much for the update. Thinking about you all lots xxx
Happy Mother's Day Jen. The beauty of your child is OVERWHELMING!n <3 Thinking of you guys often (((HUGE HUGS))))
in tears
he is sooo beautiful
love him
I want to rip the technician to SHREDS
Crossing fingers and toes for a diagnosis and a clear treatment plan for your sweet sweet little boy.
Isn't it amazing how children can be so poorly and in so much pain and yet always manage to play, smile and capture us with their infectious laughs. He is lovely. I hope you get some answers soon.
I don't know what it was, but seeing your beautiful son laugh brought tears to my eyes. Knowing he is in pain and uncomfortable, yet he smiles.... it's so beautiful. You are a wonderful mother and your son is lucky to have the family he has. I sincerely pray for your son and that he will be healed. Keep fighting for him, and always remember his beautiful laugh!
Jen your son is SO darn cute! It must be heart-wrenching to see him in such pain. Our fingers are crossed that you get some answers soon.
OMG, Jen he is adorable! I'm hoping and praying they find out what is going on. Hugs to you and your family.
I hate that HRH is in so much pain, you are all in my prayers that they will find out what this is and then find a cure for it. Lots of love and big big hugs to you and HRH and the family!
Jen, I just don't know how you are doing it. My heart goes out to you, this has to be so difficult. Let me know if there is anything I can do. Sending hugs to you and HRH.
I'm so sorry to hear about his pain, and I'm continuing to pray for him and you. Stay strong. You are amazing.
What a wonderful video! I am praying for all of you. I am so sorry HRH has to go through all of this. Hopefully there will be answers and relief soon.
I really hope you find out what's wrong soon, it must be heartbreaking. I loved the video though, so cute :)
xx
Post a Comment
Lovely to hear from you.